Friday, November 09, 2018

The Story Continued ~ ER 3

Job 27:3 “All the while my breath is in me, and the spirit of God is in my nostrils;”


You might not see ER visits as answered prayer but this second ER visit is where I got a referral to an Oncologist after this sympathetic ER doctor heard my story of being turned away from my first two oncologists.

I had told my husband and son of MY wishes and I wanted their blunt honesty in THEIR wishes. Both wanted me to live and try the chemo route, maybe my way wasn't working anymore. No, this was not my wish, but I gave into half their wish, I made an appointment to go see the oncologist doctor. I respect their wishes because I too, don’t want to die. My alternative protocol had been working all along but the stress of a dying dog was too overwhelming and my body reacted; mind, body, and soul, internally and externally.

For eight months I watched as my 14-year-old dog slowly dwindled. Right around Christmas of 2017, she showed signs of her arthritis winning the battle of her bones. She was not making it up the steps too well and a month or two passed as we carried her up the stairs on a daily basis. We knew what was inevitable but no one wanted to face or admit what was happening. Everything I had tried was simply a pacifier and got her to August where the heartbreak became an inevitable reality. We had to let her go to release her from the constant pain we knew she was enduring. 

Eight months of stress. I had done the research and knew wholeheartedly that stress was an enormous factor in the onset and the spreading of this dreaded disease but I was so hellbent on my protocol, I didn’t see the failure for what it was. I was still feeling great, walking, riding my bike, eating right and taking my vitamins but slowly the walking became strenuous. Month after month walking worsened and I blamed everything except what the culprit was, STRESS was beating me over the head with a lead pipe, stress was winning the battle.

How do I know that stress was the culprit? As soon as we put our beloved Sassy to sleep, strangely things started to happen to me in great succession. I told you I’d straighten out the timeline in the editing phase of this story, but yeah, the ball started rolling and still to this day has not stopped. It has lost momentum but that’s a good thing, it means I’m gaining balance over the situation again.

Rolling along, I called the oncologists number and the secretary told me that the (prescribed) doctor was only available at the hospital, she could hook me up with (no name) the first oncologist that dumped me, I told her no way and she offered yet another colleague of the first oncologist. The appointment was made and now everything snowballed. 

The first appointment went as expected. My husband and I sat listening as we were told that chemo was the only way to go if I wanted any quality of life. I stood firm in my stance with my protocol but admitted stress had won out and I needed help. He almost laughed at my protocol and what I’d been doing for a year and a half, but the first blood test showed, I had done something right. He admitted that I had done a good job in taking care of myself. But now it was his turn if I’d allow.

I asked him about the Oral Chemo I had seen and read about, he said the product was still in trial phases and I asked why I was seeing commercials on TV for stage 4 ER+ PR+? Hmm...he left the room and came back and offered an Oral Chemo real quick as well as monitoring blood tests and a listening ear. He was hearing me for the first time, someone in the medical field was listening and hearing me. He also wanted me to see an orthopedic surgeon to see about the pain in my hip. But first he put me right in touch with Physical Therapy for my lymphedema in my arm and that also led to a Home Health nurse coming to check up on me.

I didn’t get to see the Orthopod (as nurses called them) before my third visit to the ER via ambulance. Once again, I was in pain, called 911, the ambulance came and I was scooted onto the gurney and taken to the hospital. As I was leaving, the Home Health nurse was coming to my door wondering what was going on. I let my husband and son handle her as for the third time, I was being escorted to the emergency room. The Volunteer Emergency Unit now called me by name. I joked on the ride so as not to let worry consume me. They always agreed that laughter was the best medicine.

X-rays once again, this one of my hip. This is the one that told the story of my disease basically eating away at my hip bone and causing them to be brittle. I was told my right leg was the one in most severe trouble and to guard it. I was put on morphine and sent home. My Oncologist and Orthopod both knew of the visit to the ER and reached out to me for a visit with each of them respectively. Both had dire prognosis’, use a walker at all times and look into buying a wheelchair. 

I let my left leg do all the work for my right leg. I was in a lot of pain when I walked so we ordered a wheelchair and it was on its way. Fear had now slithered into the place where stress has dwelled. My life was failing and I needed help that only my great God could give! I think prayer is the only thing to save me now. 

Jonah 2:7 "When my soul fainted within me I remembered the LORD: and my prayer came in unto thee, into thine holy temple."



2 comments:

benning said...

I don't like this story, Joni. Do you have one with Elves and funny gnomes? Flowery fields, and puppies at play?

>:(

*sigh*

I can see this and where it is heading. Cringing already! :(

*HUGS!* <3

joni said...

I don't like this story either, Ben. I so wish I didn't have to tell it but I feel I need to for healing. It's November and the ending of my summer is all a blur and I need perspective to see just where the time went. Almost three months, gone. I have visions of the time but I need to wrap it all up and tie a pretty bow around these memories and send them out to pasture!

I actually missed flowering fields and garden gnomes, now they're all covered in snow. :(

Glad your cringing because you know it gets ugly. Don't eat before reading part four, hopefully arriving for Monday's post but then again...time.

Thank you for your continued support!