Thursday, March 07, 2019

The Bombardment: Doubt and Fear

Baltimore, Maryland - Fort McHenry
The Star Spangled Banner was written out there

Pss. 57:6 “They have prepared a net for my steps; my soul is bowed down: they have digged a pit before me, into the midst whereof they are fallen themselves. Selah.”

This week and last week I’ve been hit with a bombardment of emotions. I’d wake in the morning to tears, look out the window and all I saw was a dense fog, so deep there was no seeing a light, a blade of dead grass or even a winterized tree, just deep snow packed lawn, fields and a mist.

It all began as a flurry of uncertainty the minute I accepted chemo as a way to heal this crud. If you all have been with me throughout this ordeal you’ll know I’m dead set against chemo (no pun intended) as this being any form of healing. I see chemo as a death sentence and I can’t get past this unnerving grating feeling deep inside me.

At the beginning of this trial, the only family member I told was my niece. She was the only one I trusted to care. My hubby told his family also. I had expected care and compassion to crawl out of the woodwork but say the words ‘alternative’ to a conservative nation, you’re going to be met with a bombardment of questions and doubts and a sort of wall to be built that you’re not allowed over. All negativity I tried to avoid came creeping in, in unexpected ways! 

Here I am two years into this affliction and I’ve grown and have learned so much! My diet was never bad, I’ve been 125 -135 pounds since I was in my twenties. I didn’t keep that weight because I pigged out on all the wrong foods with no exercise. No, I pretty much cared for my health until about five years ago when living in a carnivorous world finally caught up to me. All the meat and potatoes could not be excreted quick enough with exercise, that’s for sure! But two years ago, with this diagnosis, I dove into research on natural treatments and possible cures for one of the deadliest diseases that in over one-hundred years has found no CURE! 

I found that a plant-based diet and supplementation could be the secret to healing and in two years, I’ve witnessed the success of MANY women going this route. No surgery, no chemo, no drugs, just the fruits of the earth to replenish their damaged body. I tried that route and was succeeding until last year when my world came crashing down. I realized I needed more than the food and supplements to get through this and it was the only reason I tried Oral Chemo.

What I was not expecting is finding a doctor I liked (finally) and being met with lies and fear tactics. The first doozy came in the way of telling me I should focus on the tumor/lesion on my brain. “OOPS, I must’ve been reading the wrong file, sorry.” There was no tumor, that was just a fear tactic to get me to jump into chemotherapy! Then there were the months he told me my markers were going down when in FACT they were rising! 

Assuming once again I’d jump into chemo, “Stop taking your meds, they’re not working!” 

I stopped taking my meds, I didn’t jump into chemo, then the disease started gnawing at my bones! I could FEEL it, chomping and weakening me. Doc says, “Now start taking your meds again until we get in here and get the poison in your veins to fight the battle.” 

All of the hard work I did at building up my strength in physical therapy was dwindling. I at one time was the champ of the place, meeting and exceeding my goals but just yesterday I came home and could hardly bend my knee. I climbed into bed and wrapped ice packs at different parts of my leg.

Last week I hit rock bottom. Feeling isolated and alone. Everyone seemingly has abandoned me except for my husband, son, my Physical Therapists and my loving Spiritual Online family. They are my anchors in getting me through this. Whether it’s through faith, religion, or just a positive presence, these people are the ones I’ll credit with any healing that takes place!  

I’ll be the first to admit, in all honesty, I even felt like God bailed on me. I’m just dangling on the end of this thread and it’s about to snap but luckily I’m grotesquely underweight that even a thread can hold me. Doubt and fear knocked on my door and like a fool, I let it walk right on in. 

I fear the chemo won’t work. I doubt that it is the cure all I seek. The doctor tells me of a lady who has been on Herceptin for TWENTY YEARS, and she’s still alive. And I’m supposed to find hope in that? I don’t! I will not be on this poison for one year let alone ten or twenty. That’s ridiculous! I’m concerned that the chemo, as I’ve read in all of my research, will destroy my immune system. For two years I have worked to build up my immune system! As I watch friends get sick month after month with a cold, flu, and any other illness, I’ve been the picture of health except for this one debilitating illness. I actually care about living and work my tail off to secure my strong immunity, now is chemo going to come in and destroy all I worked to build up? Am I going to lose MORE weight? How much can this tiny frail body take?

Again, feeling abandoned, I prayed. In the wee hours of the morning, for hours, I prayed. I woke to this message:

Prov. 13:12 (ESV) “Hope deferred makes the heart sick, but a desire fulfilled is a tree of life.” 

That is exactly what happened with all the talk about chemo. It brought in negativity that I didn’t know how to deal with. I’ve shunned negativity for so long when it beats me over the head, I think it’s personal and wants to fight. I think that’s the city girl in me, always ready to battle. Chemo knocked all my hope out the door. 

So what is my desire? To live! I don’t want to live until I’m ninety, but a good seventy-five - eighty would be nice. There’s my hope, right there! 

The realization of HAVING to go the chemo route is this. My diet and exercise can only save so much of me. I live within one-hundred yards of a substation, an element that cannot be removed from this healing equation. Move? Not an option, it’s Nebraska, substations are a part of life. Money would help too, then I could move. Then there are crop dusters, dropping poison on the crops to save the crop from bugs while damaging humans in the process. Such is life, I’m surrounded by fields and fields of crop dusters. I also have dealt with black mold for the ten years here. Then there is the chronic illness I’ve had all of my life and that is psoriasis. Sure supplementation has put it to sleep over the years but I do deal with flare-ups on occasion. 

I’ve been back on my plant-based diet for about three weeks now. I will continue exercising as long as my broken body and weakened limbs allow. I'll continue to meditate and pray. I’ll waltz down the organic route, the non-chemical use of body lotions and sprays, shampoos and soaps. I’ll pursue doing my part of the healing, God will do His part in protecting me, and my family will continue doing what they do, live in a toxic world right along with me.

I will wake every day and see hope in the hopeless. I will pound through these doubts and fears. Next week will come and instead of tears, I will hold hope instead of kleenex. A smile in place of a frown. Joy instead of sorrow.  I heard yesterday someone say that the simplest form of bravery is choosing to wake and take a step. How true is that?


May God bless you all in the steps that you choose to take.



3 comments:

benning said...

I don't know why the 'organic' route has not worked, but it did occur to me that God urged that upon you as a way to clean your innards and strengthen them for what's coming. In this case the oral chemo. Maybe? *shrug* If you ever hear of some nearby outbreak of Typhoid, and can get there, go. Do it! Catch a dose of it and wait.

Sounds weird, huh? But this was an avenue of research just before radiation became a cancer therapy. It was abandoned NOT because it didn't work but because the doctor researching toxin therapy thought the radiation seemed hopeful. But his studies found cancer patients spontaneously sloughing off tumors while their bodies fought Botulism, Typhoid, and such diseases. So ... might be worth a try, if it becomes possible. Last I heard this therapy is ONLY permitted as a research/experimental tool.

Carry on, as best you can, listen for HIS voice, and keep your heart aimed at the Prize. We're rooting for you! And so are the bunnies and birdies. :)

*HUGS!* <3 :D

NurseArtist said...

God is still with you, Joni, and so are those of us who have followed your story for years. We continue to pray for your full recovery and a cure for all cancers. God loves you. So do we. God Bless!

joni said...

Benning,
The organic route HAS worked! I'm still alive, aren't I? As I've said time and time again it is MORE than just eating right, the right foods and supplementation.
These substations let off so much radioactivity statistics have proven people living within a mile get cancer, A FACT! Mine is out my back door.
Crop dusters drop poison from their planes, FACT! Glyphosate is real it's causing cancer is real. Black mold, also a known cancer causer.
Stress is real, another factor. I was going along smoothly until FEAR FACTOR came into play. PTSD is nothing to mess with and doesn't just disappear when you wish it away or pray for it to leave.
And I haven't had 100% organic. Totally impossible and affording such is even a bigger impossibility! *sigh*

you said: "but it did occur to me that God urged that upon you as a way to clean your innards and strengthen them for what's coming. In this case the oral chemo"
I made that perfectly clear in a post (or two or three, lol) on WHY the oral chemo worked for me and not for the THOUSANDS of American women it has failed. Europeans it works on because of their clean diets and atmosphere.
One more thing. I'm doing IV chemo. Not PORT chemo or radiation therapy. Chemo is my last resort and one I am accepting at this juncture. (IV chemo is different than PORT chemo side effects) This is Herceptin.
I'll see how long my body can handle it, and bail when my body can't, easy peasy. :D
Thank you so much for ALL you do to see me through! You're a bestie worth keeping! <3

Dixie,
Thank you so much! I know you're going through so much yourself and know I pray for you and yours often as well. We're all in this together and God could not have surrounded me with better friends! I'm grateful beyond measure! <3 hugs <3